Answers from moms who know

New Guidelines for Genetic Testing of Children

If a genetic disorder ran in your family would you want your child tested for it? What if knowing early could not prevent it, is it still worth the test?

In a joint policy statement issued by the American Academy of Pediatrics (AAP) and the American College of Medical Genetics and Genomics (ACMG), in the US there are around 4 million infants who are tested for genetic disorders every year, the number of children being tested for genetic disorders is significantly  lower.

The reason they are issuing this new guidelines is not only because of the advancements in technologies but the growing knowledge of possible psychological side effects that children could suffer from prevention genetic testing.

According to the statement Predictive Genetic Testing is advised against unless being tested as a child will change the morbidity or morality of the results.

This change is just for testing of children, it is still highly recommended that newborns are tested for any possible genetic disorders that the state they are born in requires.

An article from Counsel&Heal reports one of the writers of the statement Dr. Lainie Friedman Ross, saying “shouldn’t just be offered. It should be strongly encouraged, because the benefits far outweigh the risks” about newborn genetic testing.

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